“Cecilia, 36, is suffering from severe disease – but denied sickness benefits”
“Single mother: ”Afraid of being homeless””
“Cecilia Prucha, 36, living with constant pain and a överrörlighet in the joints which makes it hard for her to keep the head upright. “
“When the single mother suffer relapses, she may be paralyzed for several days. “
“the employment service has ruled that the 36-year-old is too ill to work – but still denies Insurance her sickness. “
” I’m so scared to be homeless and lose my son.”
“One night woke up Cecilia Prucha of that it felt like the body was about to disintegrate. “
” Face and arms were paralyzed. I thought: ”Now I die”. It was very nasty. “
“After that the same phenomenon recurred several nights began to Cecilia search on the internet to find information about the symptoms. It led her to a test to measure the överrörlighet.”
” I had problems with instability in the joints, aches and fatigue for a long time. When I googled, I discovered that it could hang with sömnstörningarna, ” she says, and continues:”
” I did a test where among other things you would bend the fingers and the feet. I received the highest possible score. “
“Cecilia Prucha searched to a specialist clinic in Stockholm. Where the diagnosed her with Ehlers-Danlos syndrome.”
“– When I was diagnosed, it felt like all the pieces fell into place. I thought I would finally be able to get help, but instead, it was then that the real hell began. “
“Ehlers-Danlos is a collective term for several hereditary diseases, which are caused by changes in the connective tissue. It is unusual, the syndrome often leads to a difficult överrörlighet in the joints and skin to become fragile. “
“In cecilia’s case is the joints so flexible that she must wear support on the thoracic spine, wrists and anklagarna to actually be able to move. When it is the worst she can suffer from flare-ups which makes her paralyzed for several days.”
“” I have very severe hypermobility. One foot, I have sprained so many times that the trail has gone completely. Furthermore, my neck unstable, so I have a hard time keeping the head upright.”
“– I usually say that this stuff is my armor. Without it, nothing would work. “
“Have soon run out of money”
“Cecilia received her diagnosis in the spring. After that she completed a two-month-long rehabilitation noted by the doctors that it would require specialist treatment in another year or two that her health would improve. “
“But that listening is not social Insurance. In June, the authority that Cecilia was healthy enough to start working again, and dismissed her application for sickness benefit. “
” I want nothing more than to feel better and be strong enough to work. But as it is, now I’m just sicker of all the stress and anxiety. “
“36-see her bold fashion life is a struggle. She will fight to keep the pain at bay and to make life as a single mother to eight-year-old Milo.”
“In recent months, concerns about how the money should be enough to put a wet blanket over the everyday hardships. Because Cecilia previously worked full-time in the municipality of Täby was she sick pay from the employer. Then at the end of december, the 36-year-old, however, been completely without income.”
” I have a certificate from the employment service, where it says that I’m too sick to work, and that I not can look for jobs. Yet it is exactly what Insurance think I should do. I don’t know what I’ll do with myself.”
“”the Situation seems hopeless””
“Cecilia and the son live in her mother’s condominium. She has stopped paying rent to his mother to buy food. But now the situation become unsustainable. “
” In February I managed to get out 27 000 in a pension plan. Now I have only 7 000 left. I have sold lot of stuff. Soon, I have no things left. “
“Cecilia has turned to the municipality to apply for social assistance. But the constant stream of certificates, forms, and sections of the steals of the forces that she does not have.”
“– the Situation feels completely hopeless. I don’t know what I’ll do with myself. I am so afraid of becoming homeless and losing my son.”
” nKälla: the national Board of health.”
