on Monday voted in Parliament over amendments in the controversial pleiepengeordningen, which was amended in October of last year.

the Scheme deals with the rules for financial support to parents with seriously ill children. Last year’s changes would lead to an additional 9000 children and families should be incorporated into the scheme, but has received harsh criticism for several points in the course of 2018 has been reversed.

Dagbladet has among other things written about Elin Gunnarsson, who is a single mom to the seriously ill William, and who have been forced to take up personal loans to afford to be home with his son.

because of past experiences, she is afraid that the son will die if she is not in the immediate vicinity.

the Progress, Ap, SV and Sp went on Monday to remove the time limit on the support, which until now has been in five years. But together with the government voted for the christian democratic party has the courage to change the graderingsreglene. the

These rules reduces the grant to the parents if the child gets the attention for example at school, in daycare, or another established avlastningsordning.

Both relieved and disappointed,

Gunnarsson is relieved that the time limit is removed, but disappointed that the christian democratic party has not voted to support the proposed changes fully.

AFFECTED HARD: Elin fighting hard for his son William will get to go to school. She thinks it is unfair to be punished for their efforts. Photo: John T. Pedersen Show more

– the Removal of femårsgrensa is a kjempeseier. But in my and several others ‘ case, it does not help big when we still get graded support, she says to Dagbladet.

Since William started school last fall, has Elin fought hard for that he is going to get there, in spite of the disease. He is ready in his head, but has a rare muscle disorder which makes that among other things, he needs a respirator to breathe.

Even when he is under the supervision of the other Elin be in readiness day and night if something should happen.

– I will not take him out of school, even though it is a demanding job to keep him in shape to participate. I think he deserves the social and professional stimulien as all the other children his age get. It feels incredibly unfair that we should be punished for this.

the Mother of the sick Aurora (3): – the Government has set a date for when the child must hurry out to die – hard-core arbeidslinje

socialist left representatives were also among the disappointed party when the vote on graderingsreglene was done on Monday evening.

The new graderingsreglene has been a hard-core and impossible arbeidslinje for a few parents who still can’t work because the kids are sick. They’ll get a cut of the income to support the family, wrote Audun Lysbakken in an article in the Newspaper last week, with elin’s story as an example.

Now is he both happy and despondent over the outcome.

URGENCY: SV leader Audun Lysbakken believes it is urgent to put in place a scheme which protects parents with long-term sick children. Photo: Hans Arne Vedlog Show more

– the Removal of the time limit is a kjempeseier, but it is incredibly disappointing that His chose to vote with the government to maintain graderingsreglene.

– They could have stood with us and secured a change in the rectangular regulations on Monday, but they did not. It may not bortforklares.

Bound by your budget

member of parliament for the christian democratic party has, Tore Storehaug, try anyway. He explains that the Sector not be able to vote for suggestions that have budsjettkonsekvenser for 2019, where they have already negotiated with the government for a final budsjettavtale.

Therefore, promoted His own proposal to consider the matter again in Parliament in the course of 2019. Exactly when it will happen, is not certain.

He also points out that the socialist left alternative budget fails to mention the scheme or the specific group Lysbakken talk so highly about.

– I register that the other parties go high on the track, but I can’t see that they have prioritized it in their alternative budget.

– Thin explanation

The bortforklaringen seems Lysbakken both is thin and misleading. He states that the change does not necessarily want to go out of the approved budget.

the Budget for 2018 was in fact greatly exaggerated. In salderingen of the post that pleiepenger was the amount adjusted from original 1,27 billion to 750 million. The scheme had therefore cost several hundred thousand less than the government had set.

In the 2019 budget is the amount up to nok 1 billion. Lysbakken believes there is a high probability that this will cover a possible change of graderingsreglene, and points out that it is precisely the reason they don’t have added up to additional funding in its alternate budget.

– We have not asked for more money, because it is not money that is the problem. It is the facility that is too square, and that affects those who need support hard.

That they have requested a new treatment in 2019 letter does not concern.

When the Progress is now moving into a majority rule disappears the opportunity to stand together with the opposition to change the rules. I am afraid that the government will continue to expose and coaches the treatment, so they already have done.

– Has always been a temporary arrangement

the ministry of Labour and sosialminister Anniken Hauglie, says that graderingsreglene not truncated if the children’s visit in tilsynsordning is sporadic or irregular.

WILL HAVE the GRADING: the Conservative Anniken Hauglie think it is appropriate that the parents should get reduced support when the child gets the attention of others. Photo: NTB Scanpix Show more

Parents who tend their children while all the time getting no reduction in support. We believe it is appropriate that pleiepenger be graded according to how much supervision your child receives a of other. However, we see that some families may have special challenges here, and we consider, therefore, how this can be solved in a good way, she writes in an email to Dagbladet.

– It is important that we are able to offer more services to the families, even beyond the pleiepenger. Pleiepengene has always been a temporary inntektserstatning for parents who must be away from the job, in the same way as the ordinary sykelønnsordningen.

It goes the opposite Gunnarssons experiences with the regulations. She thinks it’s provocative to hear how Hauglie and the government’s inability to keep the rules.

– It is as if they do not want to understand how it is to live with seriously ill children. They have not shown any interest to listen to what we say. There are extremely few this is true, and I doubt that it is this that will tilt your budget your in the minus, ” she says.

I had hoped to get out of the parliamentary assembly room with less turmoil in the body. But now I sit again with exactly the same feeling as I came with.

– It seems that Erna cares more about the sick people who are not born, than those children who live and suffer today