“Difficult patient Edion shall be expelled: ”Feels like they are waiting for him to stop breathing””
“Edion Bajraktari, age 13, has severe learning disability, autism and hydrocephalus and can not get the care and medicine he needs in the home country, Albania.”
“Ending his shunt to work, he can die.”
“Yet, think not, the migration board that the circumstances are sufficiently distressing to the family to stay in Sweden.”
“Evri Bajraktari, 54, gives trettonårige son Edion pain, change his diaper and use a lift to get him up in the wheelchair in the tvårummaren in Finspång where they live. “
“He wants to hug and have her mum close to him. He don’t talk, but likes to watch Tom and Jerry, Babblarna and listen to Albanian songs on the cell phone. “
“Edion has hydrocephalus, hydrocephalus, and when he was eight months old he had a shunt implanted in his head. The he needs to lead away the water that collected in his head. In addition he has cerebral palsy, autism and is paralyzed in the legs.”
“Edions mother Evri and his sister Adana is critical to the care that is available to offer Edion in Albania and migration refers to the is sufficient. It is non-existent, they say.”
“”a Waste of money to operate””
“To Evri and her exman said the doctors in Albania to Edion will to live max to eight years of age. It was considered unnecessary to operate his testicles had not come down into the scrotum – he would not marry. “
“the Family Bajraktari decided to try to get to Sweden where they heard that persons with disabilities can get help. When they came here in 2012 was Edion seven years old and in very bad condition. He got a new shunt implanted and the doctors said that they would help him to survive. “
“– In Albania, they said that surgery was wasted money because he will still die. How can you say that to a mom and dad who are fighting for their son’s life? In Sweden we got new hope, ” says Edions sister of Adana, 24.”
“Beats himself in the head.”
“today is a good day, the medicine works as it should and Edion is calm and is happy to listen to their songs and watch clips on your phone. Other days, when the pain is worse, bites himself in the arms until the blood and knocks himself in the head. There will be problems with the shunt and the water was not being led away from his head, so will be the condition life-threatening.”
“a Few days a week Edion in special school in Finspång, then Evri a moment’s rest. In general, caring for him around the clock. “
“– He wants to live life, go to school and get exercise. When he is happy, ” says Evri.”
“the Family has applied for asylum because of the Edions state of health, but have been refused. His consciousness was not considered to be life-threatening and the Swedish migration board considered that he could be cared for in Albania. 2016 was awakened the middle of the night by police officers who would escort them with a flight back to Albania. At the airport in Tirana, they asked if the emergency care of Edion, but was denied when the revenge saw his condition. “
“They returned to Sweden and sought asylum again. In the rejection from the migration board states that the authority shall take into account the best interests of the child and to the consequences that the decision may have for the child’s health and development.”
“”Have done all we can””
“But the burden of proof is on the applicant, Evri has a certificate from the hospital in Tirana that they can’t provide the care her son needs and that his pain medication is not available. The documents are not probative enough, consider the Swedish migration board.”
” We have done all we can, got a certificate from the master kai fa and the chief medical officer. I do not understand how one can claim that these official documents do not agree, but to explain why, ” says the family’s lawyer, Peter Nordström. “
“He expects that soon there will be a yes or no to the verkställighetshinder that the family sent out regarding the expulsion. Then, the family can once again be awakened in the middle of the night by the police and put on a plane to Albania. Until then they continue to fight, they have applied for verkställighetshinder, started a petition, and have even appealed to prince Daniel to help them. “
“– In Albania, he will not receive any care. It feels like they are just waiting for the day he stops breathing, ” says Adana. “
“”Can not take a different decision””
“the migration board has not yet taken a position on whether they should say yes or no to the verkställighetshinder family Bajraktari submitted, that is to say that it is not possible to expel Edion and Evri right now.”
“– I have no idea of when a decision might come, but I know that you have not yet taken a decision on the new facts submitted, ” says Per Ek, press officer at the Swedish migration board to Aftonbladet.”
“The documents submitted, documents from, among others, doctors at the hospital in Albania, which states that it is not possible to nurture Edion there, is not sufficient.”
” There is no justification in the certificates of why health care would not be in and we have not received any information about access to care which would have deteriorated in the research we have done, a request within the EU system MedCOI. Then we can not make any different decision than we have made, ” says Ek. “
“▪ Swedish migration board, in its decision taken a position on the documents that the family submitted. Because they are not refugees with protection needs, takes the Swedish migration board to decide if it is ”particularly distressing circumstances” for Edion and Evri.”
“▪ Several physician certifies that the Edions health condition is life-threatening if the shunt is not working properly. By June 2018, he had a serious shuntdysfunktion. A doctor has, however, signed a certificate stating that the condition is not life-threatening, which the Swedish migration board has taken on. “
“▪ the Family has submitted a certificate from the hospital in Tirana, the Swedish migration board believes can nurture Edion. In the certificates is that they can’t care for him and that his medication is not available. The documents, the board determines not to be reliable and the burden of proof is on the family. “
“▪ ”When the Swedish migration board makes decisions about residence permits relating to children, we should take into account the child’s best interests and development. It means that we in a systematic way to develop and describe the relevant facts and analyze the consequences for the child,” writes the Swedish migration board, among other things.”
“▪ ”An expulsion of a sick person may be in violation of article 3 if it is shown that, due to the lack of appropriate care in the receiving country or lack of access to such care are significant reasons to believe that the person would face a real risk of being subjected to a serious, quick and to the revocation of the decline of the health status, resulting in intense suffering or a significant shortening of life expectancy,” writes the Swedish migration board.”
