”Totally unjustifiable killing of their children”

the Parents in Bjärred planned in concert to kill their children and then themselves.

the Reason was that the children suffered of the have a chronic fatigue syndrome ME.

” It is completely unjustifiable to kill their children. Then you can have an understanding of that the parents have found themselves under great pressure. It can be extremely hard to live as a family member of a ME-sick, ” says Mats Lindström, president of the Association for Svårdiagnostiserade Infectious diseases, and is itself relative.

On 9 January this year found a family dead in their villa in Bjärred in Skåne. The incident shook the town. How could it happen? Now, the police investigation has been presented – all the evidence suggests that the parents acted in concert and that the daughters were unaware of their plans. In a letter to the parents left behind, they write: ”None of us will ever be able to live a life in the strict sense”.

Both daughters were diagnosed with ME, chronic fatigue syndrome.

”It is a terrible thing”

Mats Lindström, president of the Association for Svårdiagnostiserade Infectious diseases, reacted with dismay when he heard about what happened in Bjärred.

” I think it is terrible. The particular killing of their children – it is absolutely indefensible. Then you can have an understanding of that the parents were under severe pressure. It can be extremely hard to live as a family member of a ME-sick.

There is not enough knowledge about the disease in Sweden, ” says Mats Lindström. Aftonbladet has earlier told about how the situation looks for him and his wife Claudia Orosco Lindström, who has the disease ME\u002FCFS.

– To get the news is a very big change in life and change even the plans of the future. As a close relative, there are not a lot of support to get, in any case did I not get it. It may clear itself despite the fact that it is a disease that very much affects the families, ” says Mats Lindström.

Many find support from each other on the facebook pages of the disease and in the pf.

– the Majority of those who are members of The facebook page that I run is patients but there are also families that are with. I notice that there is a frustration among patients and relatives that it is not done more.

Knowledge about the disease and support to families must be better, Mats Lindström.

” Overall, the society must be more active when it comes to such serious diseases like ME, you have to get an overall picture of the entire family. It is not only the sick who are suffering, and there is a need among many to get more support. For a start, you end up in any sort of panic over it, the responsibility that is placed on a when even the respective disease and as a parent you have the focus on the children’s best interests.

In case of emergency situations or thoughts of suicide, always call 112.

► Mind Självmordslinjen 90101

Support for people with thoughts of suicide. Open at 06-24 every day. Tel: 90101.

health care advice and information on the nearest psychiatric emergency room. Tel: 1177

Tel: 0771-22 00 60, all days at 13-22.

Tel: 112, all days at 21-06

Svenskakyrkan.see\u002Fjourhavandeprast

► helplines

Tel: 08-702 16 80, all days at 21-06.

► Bris – Children’s right in society

phone: 116 111, all days at 14-21.

adult helpline: 0771-505050, weekdays 9-12

► Spes – suicide prevention and survivors ‘ support

Tel: 08-34 58 73, the telephone hotline every day 19-22.

► ME\u002FCFS stands for myalgic encephalomyelitis\u002Fchronic fatigue syndrome. Myalgia means muscle pain and encephalomyelitis is an inflammation of the brain or spinal cord. Formerly called the disease is often chronic fatigue syndrome. The name has, however, been criticised for being misleading.

► Common symptoms of ME\u002FCFS is severe fatigue that does not let go after the rest, sleeping problems, joint pain, stomach upset, and muscle weakness. Many patients are bedridden for large parts of the day.

► It is unclear what causes the disease. It is common that it starts with an infection, which the affected do not recover from.

► At present there is no cure for ME\u002FCFS. Many sufferers experience some improvement with time. Some measures, including medication, can alleviate the symptoms. Overexertion could lead to the condition worsening.

Sources: the national association for ME patients and Vårdguiden