Ulla and Matti told you three years ago to its decision on the background of night Alive 24-series.One of Ella’s nurses Espoo slope in the home is Annu Instruction, who has known Ella’s age. He is fond of Ella, and the two will become clear very thing. -In this work there is a feeling involved, Annu says. Yle
Alma are 8-year-old twins, one of whom lives with his family and the other does not. The reason is a serious and rare neurological disease, alternoiva hemiplegia. It affects one in a million.
Both sisters are sick, but Alma is able to take care of at home. Ella lives in a round-the-clock in a nursing home in Espoo.
Ella, Alma and Iris parents Ulla and John tell you today, domestic Alive 24-in a series of openly difficult, three years ago solution.
– the solution was to make the whole family well-being and coping. The decision wasn’t easy, but in hindsight the only right, Ulla told the cameras.
– This arrangement was for us all the absolute and observed.
John is of the same opinion.
– slope home is all the treatment required. There you will find all what Ella needs: medical services, school and club.
Ella and alma’s illness became apparent soon after birth. The official diagnosis was the girls being two years old. In practice, alternoiva hemiplegia occurs in paralysis of the treaty seizures.
– They can cause what is just, for example, emotions: too much enthusiasm, temper, fear or stress. In addition, for both comes to epileptic seizures, Marj describes.
alma’s illness is somewhat milder than Ella’s. Alma is able to move in limited quantities and eat yourself a good day.
– When the situation is bad, he is completely helping, Ulla, however, point out.
Ella needs all the help.
He is like a newborn baby, but on a much larger scale, Matti characterizes.
Ella thrives in many disabled children and young people’s residential unit in excellent.
– there is Always a really cheerful girl greeted. We get a wide smile when we came in, the Soul rejoices.
He’ll be delighted always real clear, when the family comes over to say hi.
Ulla praises the slope of the home atmosphere and relaxation – and the fact that the family of the other children is taken into account.
– we can better when we know that he is good and that he gets all the help, Ulla thank.
Alive 24 today TV1:20: 00.
