Monica Fork has 37 years old, in 2013 had a diagnosis of metastatic melanoma stage IV and today is in remission, thanks to a molecular targeted therapy that has been following for 7 years. Since the past 26th of January leads once a month, “I’m Not + in the skin”, a web program (or better a webinars as, literally, a seminar online, by the merger of the English words web and seminar) about his illness. The episodes are streamed live on the website of the Association of Italian Patients Melanoma (APaIM), of which Fork is the founder and president, and are published on social platforms. In all there are 12 events, scheduled in the penultimate or on the last Sunday of each month (the calendar). “This is the first webinars as melanoma conducted by a patient, and in reality is more of a webinars as”, explains Fork: “I’m Not + in the skin is in fact a series of broadcasts live on the web, made into a television studio, lasting about an hour, which give the possibility to who is connected to intervene by remote.” The participation is free: just register on the site APaIm, leaving your email address.
A bet, an argument, Each episode tackles a specific topic. In the first, which has been on the web on the 26th of last January, we talked about general aspects of melanoma, such as the number of people affected and risk factors. In the course of the second appointment, onweb Sunday, march 1, will be addressed adjuvant therapy. “The format – resume of the presenter – always involves the presence in the studio of a physician experienced of melanoma that is part of our scientific team is a multidisciplinary, composed of oncologists, surgeons, dermatologists, nutritionists and psiconcologi of great experience on the disease.”
Answer in the direct In the first part of the episode, the expert introduces the topic of the day and face it with scientific rigor, but also with a very simple language, and direct. The second part is devoted to the responses of users: “The questions that come in direct are selected, because they are many and we can not give all the answer in that space. But – ensures Fork – one who has not had his answer in the course of transmission, will have you on the site”. The program closes with a “wall of emotions”, is dedicated to a patient that tells his story.
A format for all “Is a format that is designed for the patients and for their caregivers, but also for the population in general because we give a lot of information on risk factors and prevention of melanoma, topics that may relate to all,” says Fork. The incidence of melanoma has increased 4% per year in the last twenty years: in 2019 there were 13 thousand new cases in Italy, and today, there are 160 thousand people living with a diagnosis of melanoma in our country. “The project concludes, Fork – was born from an idea of my companion and caregiver, William Angiuli, actor and director, who stands by my side in the realization of the program with Rossana Peritone, the daughter of a patient, and my assistant, and it is realized thanks to the support of four pharmaceutical companies”.
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