To this end, the HDH conducts four main activities:
In 3 and a half years, the HDH has made its place within the health data ecosystem, supporting almost a hundred research projects and several dozen actors in charge of creating or consolidating health databases. Recognized at European level through, in particular, its involvement in the prefiguration of a European health data space, the HDH is also fully committed to its actions to disseminate a culture of health data, in particular through its citizen management and its multiple partnerships with France Assos Santé.
The HDH service offer is intended to be able to adapt to various needs in the context of strong demand from a heterogeneous ecosystem. Industrial players are also among the HDH’s targets. Indeed, health data can be used for the development of new software or services, innovative approaches for the design or evaluation of drugs or for carrying out studies.
Thus, almost a third of the projects supported by the HDH to date include an industrial company. For example, the HYDRO project led by the start-up Implicity aims to develop an algorithm to predict heart failure attacks leading to hospitalization for patients with a pacemaker. The HDH contributed to the transfer of data from 27,000 pacemakers and 1,000 tables from the main SNDS database to its technological platform and contributed to the development of a match between these sources. At present, the development of the algorithm is finalized and presents interesting performances.
In general, start-ups and manufacturers need, like all other actors, help to access data. They need to have visibility on the available data, their content and the access procedures both in terms of formalities and in terms of financial conditions or deadlines. When they collect the data themselves, they generally seek advice on regulatory compliance issues. In the same way as the other players, they generally see an interest in cross-referencing their data or other sources with those of the Health Insurance and are, if necessary, interested in support for the development of the strategy of matching or its operational implementation. Access to expertise to process centralized data is also a major challenge. The availability of standardized data in international formats is an asset.
For manufacturers, perhaps even more so than for other players, the time factor plays a determining role. It is therefore a question here of developing a service offer aimed at reducing the delays of each stage and at industrializing everything that can be in this process. One of the essential lines of work is to identify the actors with whom to establish fluid and promising partnerships. Prior to a more in-depth work of mapping the actors, the HDH has launched, alongside PariSanté Campus, the organization of an event for start-ups, on June 29, in order to promote meetings and exchanges on the obstacles currently encountered in access to health data.
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Content designed and proposed by L’Agence Delta. The editorial staff of Le Figaro did not participate in the production of this article.
